ARE YOU SPEAKING UP about your treatment administration burdens?
YOU may be trading off ease of administration for bleed protection
Administration burdens you may want to share with your doctor include:
- Painful injections or infusions
- Damaged veins or veins that are hard to find
- Large volume injections
- Burning or stinging
- Soreness
- Bruising
- Scarring
- Itching
- Swelling
Luke lives with hemophilia A.
Bentlee lives with hemophilia A.
are you compromising on
ease of administration in your treatment?
Large needles for injections and infusions
Injecting large volume doses for better coverage
Too many administration steps and supplies
Refrigeration requirements
Wasted product
Planning activities around treatment schedule
Concerns carrying medication and supplies
Is treatment getting in the way of your everyday life?
IN A STUDY OF 354 PEOPLE WITH HEMOPHILIA A,
26%
OF 104 PEOPLE ON FACTOR 8 PROPHYLAXIS
16%
OF 85 PEOPLE ON FACTOR 8 MIMETIC THERAPY
REPORTED THEIR CURRENT TREATMENT INTERFERED WITH TRAVEL AND VACATIONS AT LEAST SOMETIMES.
43% of patients on Factor 8 prophylaxis and 18% of patients on Factor 8 mimetic therapy also reported their treatment interfered with social activities, daily activities, work, and school at least sometimes.a
aFrom June 6, 2020, to June 15, 2022, 354 people with hemophilia A participated in a survey. Question asked: “How much does taking your current treatment interfere with [your travel or vacations, social activities, daily activities, work, or school]?” Participants responded on a 5-point scale: not at all/never, a little/rarely, somewhat/sometimes, very/often, or extremely/always. Responses in individuals over time may vary and may not account for continuous participation.
Luke lives with hemophilia A.
SOME DOCTORS WERE NOT COMPLETELY SATISFIED WITH CURRENT PROPHYLAXIS TREATMENTS—
Are you?
in a survey of 62 doctors,
40% were not completely satisfied with non-factor therapy that works like Factor 8 (Factor 8 mimetic therapy) and 53% felt the same about Factor 8 extended half-life (EHL) therapy due to concerns about efficacy (how the product works), side effects/safety, and administration and dosing.b,c
REASONS WHY DOCTORS SAID THEY WERE NOT COMPLETELY SATISFIED
Luke lives with hemophilia A.
What would it take for you to feel completely satisfied with your treatment? Talk to your doctor about your concerns.
bThe number of doctors who have reported being satisfied with current treatment is unknown.
cBased on a study of 326 patients with hemophilia A, 62 doctors were asked if they were completely satisfied with their patient's prophylactic treatment. Doctors reported reasons for dissatisfaction on behalf of 31 patients on Factor 8 mimetic and 55 patients on Factor 8 EHL prophylaxis.
Questions asked: "Please indicate your overall satisfaction with the current treatment in terms of how well it manages the patient’s hemophilia" and "Why are you not completely satisfied with the patient's current prophylactic treatment?"
Luke lives with Hemophilia A
Questions to consider asking
your doctor About your treatment challenges
What if I have concerns with my current dosing schedule?
What can I do differently about my administration concerns such as pain, injection volume, or preparation issues?
How often should we reassess my treatment plan to make sure it’s still the best fit?
Many people are not dosing with every-4-week Factor 8 mimetic therapy
Why aren’t more people using an every-4-week dosing option if it’s available?
You should only take medications as prescribed by your healthcare provider.
Factor 8 mimetic therapy=non-factor therapy that works like Factor 8.
dBased on qualitative survey data captured as of Q1 2025.
Many desire less frequent dosing. DO YOU FEEL THE SAME?
SPEAK YOUR TRUTH
About your current Administration challenges
DON’T YOU DESIRE TREATMENT THAT FITS INTO YOUR ROUTINE?
Researchers are Exploring ways to make administration more manageable
Any bleed you have is worth speaking up about
Explore data behind breakthrough bleeds
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