ARE YOU SPEAKING UP about your treatment administration burdens?
YOU may be trading off ease of administration for bleed protection
Administration burdens you may want to share with your doctor include:
- Painful injections or infusions
- Damaged veins or veins that are hard to find
- Large volume injections
- Burning or stinging
- Soreness
- Bruising
- Scarring
- Itching
- Swelling
Luke lives with Hemophilia A
Bentlee lives with Hemophilia A
are you compromising on
ease of administration in your treatment?
Large needles for injections and infusions
Injecting large volume doses for better coverage
Too many administration steps and supplies
Refrigeration requirements
Wasted product
Planning activities around treatment schedule
Concerns carrying medication and supplies
Some doctors were not completely satisfied with current prophylaxis treatments,
Are you?
in a survey of 62 doctors,
40% were not completely satisfied with non-factor therapy that works like Factor 8 (Factor 8 mimetic therapy) and 53% felt the same about Factor 8 extended half-life therapy due to concerns about efficacy (how the product works), side effects/safety, and administration and dosing.a,b
Reasons why physicians said they were not completely satisfied
Luke lives with Hemophilia A
What would it take for you to feel completely satisfied with your treatment? Talk to your doctor about your concerns
aThe number of HCPs who have reported being satisfied with current treatment is unknown.
bBased on a study of 326 patients with hemophilia A, 62 physicians were asked if they were completely satisfied with their patient's prophylactic treatment. Physicians reported reasons for dissatisfaction on behalf of 31 patients on FVIII mimetic and 55 patients on FVIII EHL prophylaxis.
Questions asked: "Please indicate your overall satisfaction with the current treatment in terms of how well it manages the patient’s hemophilia" and "Why are you not completely satisfied with the patient's current prophylactic treatment"
Luke lives with Hemophilia A
Questions to consider asking
your doctor About your treatment challenges
What if I have concerns with my current dosing schedule?
What can I do differently about my administration concerns such as pain, injection volume, or preparation issues?
How often should we reassess my treatment plan to make sure it’s still the best fit?
Many people are not dosing with every-4-week Factor 8 mimetic therapy
Why aren’t more people using an every-4-week dosing option if it’s available?
You should only take medications as prescribed by your healthcare provider.
Factor 8 mimetic therapy=non-factor therapy that works like Factor 8.
cBased on qualitative survey data captured from Q1-Q3 2024
Many desire less frequent dosing. DO YOU FEEL THE SAME?
SPEAK YOUR TRUTH
About your current Administration challenges
DON’T YOU DESIRE TREATMENT THAT FITS INTO YOUR ROUTINE?
Researchers are Exploring ways to make administration more manageable
Any bleed you have is worth speaking up about
Explore data behind breakthrough bleeds
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